1 Year / by Maranie Staab

Last night and today we celebrated Kaylee being cancer-free for one year with a little trick-or-treating in the rain and a small get together.

For as joyous as that is, it comes with bittersweet news. Last month I learned that Kaylee’s form of cancer is more rare and serious than I had known. There are two types of Wilms tumors; 9 out of 10 children have one but Kaylee had the other, known as one with anaplastic histology. Her mother, Kristina, shared that relapses (about 85%) occur within two years of diagnosis of the original Wilms' tumor, but for some children it can come back later than this. For some reason, I had assumed she was relatively home free. But, on Tuesday of next week she has a scan and will continue to have scans every six months for at least the next five years.

It is hard to believe so much time has passed or that this all began with a trip to the New York State Fair, somewhere I likely never would have gone if not for a class assignment. In many ways, it really feels as though this story has only begun.